Young Person's Ambassador

Jess Keeling

Jess Keeling, aged 17 years old, from Blaby, diagnosed with Long QT syndrome, often a pre-cursor to SADS, in 2008.

'I was 12 when I felt chest pain whilst walking. As a precautionary measure we went to the doctors and they were doing a scheme that meant that if any child came in with chest pain, they'd do an ECB and check for undiagnosed heart conditions.

It came back abnormal and I had tests at Glenfield Hospital. The results were again abnormal and I was put on beta-blockers with further tests revealing that I had congenital defect. The initial chest pain I'd experienced wasn't actually related, it was muscular, so I had no real symptoms. I was just lucky that the GP surgery were carrying out those tests'.

Jess was told that she could no longer play competitive sport, at a time when she had been identified by the Football Association as of international potential. A keen footballer, she was determined to continue playing sport and living her life to the full, as she explains, 'I'd go crazy if I couldn't play football. I play four times a week for Leicester City Women, the county and the school. The FA let me play despite my condition and the physio's have a list of the medications that I am not allowed to take. 'It doesn't really affect my day to day life. I'm not supposed to do things that get the adrenaline going, like visiting Alton Towers, but I do. You have to live your life and taking medication reduces the chance of anything happening by 95%'.

Following Joe's death, the Humphries family invited Jess to become the Trust's Young Persons' Ambassador; a role that she feels very passionate about. 'I've talked at launch events and played in the JHMT Legends Charity Football Match'.

Jess Keeling said:

'The main thing is to raise awareness. If young people had compulsory checks at a certain age there would be far less casualties, and if every young person learnt CPR they would become a potential lifesaver but having defibrillators at schools and sport clubs would also be handy in emergency'.

Steve Humphries (Chair, JHMT) said:

Jess' story demonstrates what can happen when an underlying heart condition is found just in time. However, no young person in the UK should ever be put in the position of having to rely upon a stroke of 'luck' to spot a congenital heart defect. With the right medical advice and support, Jess, really is living life to the full and playing the sport (football) she loves with a passion. There can be no better role model for JHMT than young Jess who is leading by example and is one of the many inspirational young people involved in the Trust's work to increase the awareness and reduce the incidence of SADS'

Partners & Supporters

  • Kasabian
    Jessica Michelle School of Dance
    Quorn Football Club
    Musical Village
  • Shepshed Lions - Community First Responders
    Rothley Park Cricket Club
    Willmott Dixon
    Jersey Budd
  • 6PM
    Leicester Legends
    Loughborough Echo
    Leicester Coritanian
  • East Midlands Ambulance Service
    Samworth Brothers
    Sileby Town CC
    British Heart Foundation
  • Health For Teens
    Pukaar News
    Leicester Tigers
    Leicester City Council
  • Boden
    Westleigh Developments
    Leicester Mercury
    Arrhythmia Alliance
  • ITV Central
    Sports Cardiology UK
    Soar Media
    Gem 106
  • Demon Media
    Cipher Entertainment
    Loughborough Town Cricket Club
  • Dickinson & Morris
    Longslade Community College
    Leicester City FC Community Trust
  • Rothley Parish Council
    Leicester City In the Community
    Leicestershire and Rutland County FA
  • Shepshed Lions Club - Community First Responders
    CKI Martial Arts
    Bradgate Park Trust
  • UHL Trust
    Leicester Unity Boxing Club
    BBC Radio Leicester
  • De Lisle
    UK Paintball
    Warriors Basketball Club
  • Agora
    David Wilson Homes
    Oak FM
  • Heartwize
    De Montfort Students Union
    Leicestershire County Council
    AFC Andrews
  • Inside Land
    Trophy Parlour